Monday, September 27, 2010

What Asperger's looks like to us.

This is part of an article I shared with "Autism Speaks - In Our Own Words" - a website/blog specifically for parents to share their own stories. I mentally noted segments of this from the time he was diagnosed - and this is what it looks like now.

Our Asperger’s – not just his.

What Asperger’s Syndrome looks like in OUR home:

It is lining up trains…and trucks…and dinosaurs…and anything else that can be lined up!

It is temper tantrums that other people cannot understand and never will.

It is the most loving little boy, throwing his arms around us a hundred times, saying, “I love you, Mommy!” and “I love you, Daddy!”

It is feeling blessed that he can tell us he loves us.

It is a lollipop in each hand, because everything must be in even amounts.

It is not knowing how to tell the teacher or his classmates “Hello” or “Goodbye” but being able to give and accept hugs.

It is learning his ABCs at 18 months old!

It is not relating to other moms most of the time and wondering what it would feel like if I could.

It is repeating things over and over because it makes sense to him.

It is an intense knowledge of the solar system - and wishing on stars at night.

It is struggling to cope on the soccer field but giving 200% every time.

It is enjoying the after-game snacks and it being all worth it!

It is playing with bubbles.

It is having trouble getting to sleep and not wanting to wake up in the morning.

It is saving his pennies and quarters “for the sick kids.”

It is having a hard time going to the library or the zoo but loving to jump on a trampoline or swim all summer long.

It is swimming underwater with no help at all.

It is one parent not being able to stand on the sideline at soccer games or practice because he is so attached.

It is watching from the fence and bursting with pride anyway.

It is pronouncing “Quetzalcoatlus” better than his parents.

It is exhausted parents who rarely get a break.

It is having so much devotion to their child that they don’t ask for a break.

It is having so much love for their child that they don’t need a break.

It is splashing through every rain puddle.

It is chewing on shirts or blankets because it is calming.

It is a fear of sudden, loud noises because an ordinary noise can be intense.

It is learning to whistle and being very good at it.

It is reliance on routine and having a meltdown when it changes.

It is throwing grass on another kid’s head as a way of saying, “I want to play.”

It is getting so overly excited when a grandparent comes to visit but sometimes not knowing what to say.

It is mastering a computer by the age of 4.

It is Daddy feeling jealous and proud of how skilled his 4 year old son really IS with computers.

It is eating an ice cream cone everyday if he could.

It is a constant need to be snuggled and his parents embracing every second of it.

It is saying “please” and “thank you” more than we could have ever hoped.

It is a rude glance from across the restaurant; it is our son’s giggle that makes us not care.

It is strawberry picking – but mostly just eating!

It is walking on tiptoes because it feels good.

It is not enjoying birthday parties because of all the noise and people.

It is someone telling you that your child is misbehaved or just being a kid. It is you knowing they are wrong.

It is you knowing your child better than anyone else.

It is growing accustomed to leaving events early because he can only handle so much.

It is being amazed with Walt Disney World and riding the same ride over and over and over.

It is tripping over things that anyone else would walk around.

It is being prepared at all times for any potential trigger that will cause a meltdown. It is being exhausted from doing this. It is doing it anyway.

It is helping Mommy in the garden.

It is refusing to color because holding a crayon is difficult.

It is trying to be anything that flies.

It is taking a two hour bath…just because it’s fun!

It is two parents hanging onto each other as tight as they can because to let go is not possible.

It is our beautiful little boy right at the center of it all.

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